{"id":21601,"date":"2014-05-16T13:27:25","date_gmt":"2014-05-16T13:27:25","guid":{"rendered":"http:\/\/jornalbeirario.com.br\/portal\/portal\/?p=21601"},"modified":"2014-05-16T13:27:25","modified_gmt":"2014-05-16T13:27:25","slug":"povoado-campeao-em-portadores-de-xp","status":"publish","type":"post","link":"https:\/\/jornalbeirario.com.br\/portal\/?p=21601","title":{"rendered":"Povoado campe\u00e3o em portadores de XP"},"content":{"rendered":"<p style=\"text-align: justify;\">\n<figure id=\"attachment_21583\" aria-describedby=\"caption-attachment-21583\" style=\"width: 300px\" class=\"wp-caption alignleft\"><a href=\"https:\/\/jornalbeirario.com.br\/portal\/wp-content\/uploads\/2014\/05\/djalmaXP.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-21583\" title=\"djalmaXP\" src=\"https:\/\/jornalbeirario.com.br\/portal\/wp-content\/uploads\/2014\/05\/djalmaXP-300x225.jpg\" alt=\"\" width=\"300\" height=\"225\" srcset=\"https:\/\/jornalbeirario.com.br\/portal\/wp-content\/uploads\/2014\/05\/djalmaXP-300x225.jpg 300w, https:\/\/jornalbeirario.com.br\/portal\/wp-content\/uploads\/2014\/05\/djalmaXP.jpg 640w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><figcaption id=\"caption-attachment-21583\" class=\"wp-caption-text\">O aposentado Djalma Ant\u00f4nio Jardim, 39 anos, luta contra a doen\u00e7a desde os sete anos de idade (Foto: Divulga\u00e7\u00e3o)<\/figcaption><\/figure>\n<p style=\"text-align: justify;\"><span style=\"font-size: 13px;\">Portadores de uma doen\u00e7a rara de pele sofrem com isolamento e falta de perspectivas de um futuro melhor em Araras, povoado com cerca de 800 moradores que fica a 40 quil\u00f4metros de Faina, na regi\u00e3o noroeste de Goi\u00e1s. Vinte e quatro pessoas t\u00eam o diagn\u00f3stico confirmado de xeroderma pigmentoso, ou XP, fruto de uma muta\u00e7\u00e3o gen\u00e9tica que gera hipersensibilidade a luz e deixa os pacientes at\u00e9 mil vezes mais suscet\u00edveis ao c\u00e2ncer de pele do que as demais pessoas. A taxa de incid\u00eancia registrada na comunidade &#8211; de 1 para cada 40 habitantes &#8211; \u00e9 a maior do mundo, segundo a Associa\u00e7\u00e3o Brasileira de Xeroderma Pigmentoso (AbraXP).<\/span><\/p>\n<p style=\"text-align: justify;\">Nos Estados Unidos, por exemplo, essa taxa \u00e9 de um caso para cada 1 milh\u00e3o de habitantes, compara a pedagoga e presidente da AbraXP, Gleice Francisca Machado, 38 anos. \u201cA concentra\u00e7\u00e3o de um grupo de portadores do xeroderma na propor\u00e7\u00e3o que temos aqui \u00e9 rar\u00edssimo e faz com que sejamos a maior comunidade com a doen\u00e7a do mundo. Muita gente n\u00e3o desenvolveu sintomas ainda. Por isso, os n\u00fameros podem aumentar. Ap\u00f3s a constata\u00e7\u00e3o do fato, j\u00e1 recebemos diversos pesquisadores, at\u00e9 mesmo do exterior, intrigados com o caso\u201d, explicou.<\/p>\n<p style=\"text-align: justify;\">A doen\u00e7a \u00e9 heredit\u00e1ria, ou seja, apenas transmitida de pais para filhos, e ainda n\u00e3o existe uma cura. Sendo assim, os portadores precisam se esconder dos raios ultravioletas (UVA e UVB) gerados pelo sol, pois isso aumenta ainda mais a evolu\u00e7\u00e3o das manchas na pele e o aparecimento de tumores malignos, segundo informa\u00e7\u00f5es da AbraXP. Os moradores de Araras j\u00e1 passaram por centenas de procedimentos cir\u00fargicos e tiveram seus rostos mutilados, sendo obrigados a usar pr\u00f3teses rudimentares, feitas a m\u00e3o.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Portadores de uma doen\u00e7a rara de pele sofrem com isolamento e falta de perspectivas de um futuro melhor em Araras, povoado com cerca de<\/p>\n","protected":false},"author":1,"featured_media":21583,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"pmpro_default_level":"","footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[18],"tags":[],"class_list":["post-21601","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-saude","pmpro-has-access"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Povoado campe\u00e3o em portadores de XP - JORNAL BEIRA RIO<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/jornalbeirario.com.br\/portal\/?p=21601\" \/>\n<meta property=\"og:locale\" content=\"pt_BR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Povoado campe\u00e3o em portadores de XP - 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